Bill Caption

Relating to the establishment of a sickle cell disease registry. 

Fiscal Notes

Estimated Two-year Net Impact to General Revenue Related Funds for HB 3673, As Introduced : a NEGATIVE impact of ($1,973,497) through the biennium ending August 31, 2023. 

The bill would make no appropriation but could provide the legal basis for an appropriation of funds to implement the provisions of the bill. 

Bill Analysis

HB 3673 would require the State Department of Health Services to establish and maintain a registry of individuals diagnosed with sickle cell disease for use as a single repository of accurate, complete records to aid in the cure and treatment of sickle cell disease in Texas. 

HB 3673 would require such a registry to include a record of individuals in Texas who were diagnosed with sickle cell disease; and any other information regarding individuals who have been diagnosed with sickle cell disease that is determined necessary and appropriate for inclusion on the registry by the Executive commissioner of the Health and Human Services Commission. 

HB 3673 would require healthcare facilities to provide data regarding individuals who have been diagnosed with sickle cell disease to the Department of State Health Services. 

Vote Recommendation Notes

HB 3673 would create a state registry for people who suffer under sickle cell disease. The state should not be creating centralized databases to track citizens for any reason. This is a significant violation of individual liberty and limited government. We note that not only is this registry compulsory, there is no provision to allow a person to opt out. Texas Action opposes HB 3673.